SAKK Patient Advisory Board

Portrait
Dr.
Sander
Botter
SAKK Patient Advisory Board
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Dr.
Tourane
Corbière
SAKK Patient Advisory Board
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Aldo
Fiscalini
SAKK Patient Advisory Board
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Dr.
Ursula
Ganz-Blättler
SAKK Patient Advisory Board
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Helga
Meier Schnorf
SAKK Patient Advisory Board
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Rosmarie
Pfau
SAKK Patient Advisory Board
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Dr.
Isabelle
Roos
SAKK Patient Advisory Board

 

Cooperating closely with cancer patients and patient organizations is vital for the further development of new and improved cancer therapies that aim at a higher cure rates and a better quality of life for patients. 

Accordingly, we founded the Patient Advisory Board in November 2015 in order to better understand the experiences and needs of cancer patients and their relatives, and to incorporate these needs in our research proposals. 

We strive for a partnership with our patients that is based on transparency, respect, trust, cooperation, fairness, and joint growth. 

    Advantages and objectives

    The SAKK Patient Advisory Board advises us on research projects, communications, or strategic affairs. Together with the board, we aim to

    • improve communication between researchers and patients;
    • identify patients' needs so that research projects prioritize a more patient-oriented approach;  
    • improve the information available to patients who decide to participate in a trial;
    • increasingly consider the needs of trial participants in the development of clinical trials and issues;
    • offer long-term, innovative therapies that are optimally aligned with patient needs;
    • motivate and encourage patients to participate in clinical trials. 
    • Isabelle Roos: As a biochemist and in my professional life, I gained experience in medical trials, registration of drugs, giving relevant medical training and responding to medical enquiries. As a cancer patient I have experienced the health care system from a patient’s perspective. I would like to pass on my experience to patients and help them to assert their right to be informed and participate in medical decisions.

      Tourane Corbière: My skills as an engineer and teacher enable me to understand complex problems and translate them into language that is accessible to non-experts. As a researcher I am used to reading and commenting on scientific studies. I can contribute my professional skills to the Patient Advisory Board in the same way that I can share my own experience of cancer. As a patient I want to understand how cancer works and what treatment options are currently available. It’s only sensible to make use of my own experience of cancer for the benefit of other patients.

      Ursula Ganz: As an historian and media studies expert I am particularly interested in questions relating to collective memory. I worked as a journalist for many years, and this helps me to communicate complex issues that arise between physicians and patients in a way that non-experts can understand. I had breast cancer in 2010, and a chronic fatigue syndrome (CFS) that required therapy, and that sent me back to square one in career terms. As a member of the SAKK Patient Advisory Board I am particularly keen for the common side effects and long-term complications of cancer treatments continually to be researched, openly communicated and, wherever possible, reduced.

      Helga Meier: The guiding principle of my involvement in SAKK is to give the Patient Advisory Board a public face. I have many years of experience as the partner of a man with a rare type of solid cancer and as the head of an internationally networked patient organization. This helps me not only to understand cancer as a disease but also to play an active role in networking patients, physicians, research, and organizations representing cancer patients. The end result benefits not only patients but everyone involved.

      Rosmarie Pfau: Patients are experts in their disease, and I am convinced that this experience makes a major contribution, and should be used to improve patients’ quality of life. I want to continue playing my part and to give a more powerful voice to patients’ needs. I want to help encourage other patients to become recognized partners in scientific and ethical committees. I’m willing to learn more about the practical side of drug research and development, and want to make a worthwhile contribution in this field.

      Sander Botter: As a research scientist I often work on clinical trials, so I’m familiar with their structure and ethical framework. For me it’s important to make the technical elements of such trials easier for patients to understand, so that they understand why it’s so important for them to participate. This is the only way for us to make progress in treating cancer.

      Aldo Fiscalini: Life is a roller coaster. I would like to share my experience of cancer, my worries, and my joy with others. In this way I can help other people with cancer and contribute to the continuing development of medicines and to research.

    • Would you like to be involved? Please contact us: